Journal
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
Volume 37, Issue 5, Pages 788-796Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.jpainsymman.2008.05.006
Keywords
Terminal cancer; cancer patients; palliative care; narrative research; narrative analysis; informal carers
Funding
- U.K. Economic and Social Research Council (ESRC) [ESRC RES-000-22-2031]
- ESRC [ES/E011586/1] Funding Source: UKRI
- Economic and Social Research Council [ES/E011586/1] Funding Source: researchfish
- National Institute for Health Research [CL-2007-06-008] Funding Source: researchfish
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Narrative methods have played a minor role in research with dying patients to date, and deserve to be more widely understood. This article illustrates the utility and value of these methods through the narrative analysis of semi-structured interview data gathered in a series of interviews with two terminally ill cancer patients and their spouses. The methods and findings associated with these two case studies are outlined and discussed. The authors' contention is that an analytical focus on the naturalistic storytelling of patients and informal carers can throw new light on individuals' perceived illness states and symptoms, care-related needs, behaviors, and desires. In addition, the juxtaposition of two cases that share a number of markers of risk and need at the end of life illustrates how the narrative analysis of patients' experiential accounts can assist in uncovering important distinctions between cases that, are of relevance to care management. J Pain Symptom Manage 2009;37:788- 796. (C) 2009 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
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