Journal
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS
Volume 8, Issue 4, Pages 1-18Publisher
SAGE PUBLICATIONS INC
DOI: 10.1525/jer.2013.8.4.1
Keywords
Consent; community engagement; research; Africa; Asia; research ethics
Categories
Funding
- Wellcome Trust [094062, 096527]
- Enhancement Award [BXRPOV0]
- Global Health Bioethics Network
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CONSENT AND COMMUNITY ENGAGE-ment (CE) in health research are two aspects of a single concern-that research is carried out in a respectful manner where social value is maximized. There are important overlaps and interdependencies between consent and CE; for example, CE can provide insights into how best to tailor consent to context and can be an important component of consent processes. Engaging communities can also have intrinsic and instrumental value beyond consent; for example, as a means of showing respect and identifying appropriate ways of working respectfully. In this paper we critically examine how CE and consent processes are characterized, conducted, and evaluated in diverse health research contexts, and propose a preliminary research agenda to support future learning in these critical areas.
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