Journal
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS
Volume 4, Issue 2, Pages 3-16Publisher
SAGE PUBLICATIONS INC
DOI: 10.1525/jer.2009.4.2.3
Keywords
ethics of community-based participatory research; community-academic partnerships; qualitative research; in-depth interviews; faculty; academic medicine
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Funding
- National Institute for Environmental Health Sciences [ES1208502]
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ACADEMIC FACULTY MEMBERS ARE increasingly following community-based participatory research (CBPR) principles. We conducted qualitative, in-depth interviews with 22 Johns Hopkins faculty members who conduct community-based research to understand their experiences and perspectives. Respondents engaged the community in numerous ways, ranging from working with community advisory boards to hiring community members as project staff to collaborating with community members across all phases of research. Challenges included defining community, ensuring adequate community representation, sharing power with community partners, overcoming an institutional history of strained community-academic relationships, and working within existing academic incentive structures. Despite these challenges, respondents generally felt their experiences conducting research with community participation were positive and successful. Policy changes at funding and academic institutions and an emphasis on the similarities between CBPR and ethical principles could improve support for CBPR approaches.
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